HBOT

Today we completed our first dive of our second series of 40 dives. I guess it would be considered dive #41. We went to a new center. I really liked the chamber (bigger then the last ones we went in) and the staff was super nice. The last time we did hbot we were in the chamber for a total of 60 minutes even if it took us 15 minutes to get to pressure. This time we are in the chamber the full 60 minutes at our prescribed pressure. This is great! So today it took us 22 minutes to get to pressure and then we stayed there for 60 minutes and then decompressed. Gregory had some issues today with ear pressure. He is getting over a cold and still has some congestion so his ears were really bothering him. We had to go really slow to get to our pressure of 1.5. I am going to give him a decongestant tomorrow and see if that helps. He was great otherwise and the staff thought he was a little flirt. He was being really cute. I have to get some pictures up of us in the chamber.

It is scheduled

Ok, so I thought and worried about whether or not to go deeper into debt. To spend more money that I don't have. We decided to do it. The hbot center is giving us a huge discount and I just feel like I have to take the chance. I feel like I have to take the chance that the oxygen is going to help Gregory get further along. I still see him struggling. I don't deny his progress but I can't help but think there is more I can do for him. We talked to Dr. Demio, our DAN doc and he thinks we should do more to help with inflammation. Gregory still struggles with constipation. I think it is a big sensory issue for him. It hurts. He cries. I want him to feel good. His body still doesn't feel good and that limits his engagement with us at times. We have also run out of mb12 shots so they are coming and I can see the difference when he hasn't had them for a few days.

I have also started the girls on the gfcf diet and supplements. I have seen good changes for Olymbia. I haven't noticed anything for Sophia yet. They tell everyone they are eating organic :)

I hope someday I can sit back and not worry. Not worry about how my kids are developing, not worry if I am interacting with them enough, and not worry if I am doing enough for them. I just want to enjoy them, period. I feel like I have this pit in my stomach ALL OF THE TIME. I wake up and it is there and I go to bed and it is there. I pray for peace and reassurance that God will take care of us and guide us...

More HBOT?

I have been thinking about doing another 40 sessions of Hyperbaric Oxygen Therapy. If it didn't cost us anything I would do it in a heartbeat but unfortunately that is not the case. When all of your financial resources are dry it seems like an easy decision to make but for me it is a hard one. Our first 40 went well and I saw improvements in Gregorys development that I was very happy with. So my thoughts are, what could another 40 do for him? Unfortunately we cannot see into the future so it is a gamble. But what if it is that last little piece we are looking for? Gregory is doing well, I can't deny it. But when your child has come so far you always want more for them. I will not settle. I want the works for him. I want him to have many friends, go to college, get married, have children. The same dreams I had for him before that dark heart sinking day I realized my baby boy did not want to look into my eyes. There are so many things out there to try. What will benefit him the most? Is it more hbot, detoxification, HANDLE, vision therapy? And the list goes on... I have made RDI our life, so that will be with us always. It is my way of interacting with Gregory, with my girls, and actually I find myself interacting in this way with any child I come into contact with.
I am so thankful for the progress Gregory has made, but am I crazy for wanting to do more? I got a call from an hbot center today. He was offering us a discounted rate if we could come during certain times. Is this a sign that I need to try it again? Should I get that temping hygiene job so I can afford this for a couple of months? It never ends... The questions, the worries if I am doing enough.